My Amazing and Breakthrough Story

My Amazing and Breakthrough Story

After years of alcoholism, poverty , crime and near finally death, I finally have my break in life, my Cirrhosis (I was born with a rare genetic condition called Alpha 1-antitrypsin deficiency) , which causes genetic liver and/or lung disease), my early adult life become troubled due to bullying and confidence issues, I was drinking well over excess amounts, not caring if I live, thinking I will die anyway, because when your diagnosed with alpha-1 "theoretically" there's no cure, “What's the point in even living , am ugly never gonna get married, have kids or get a job.

So continuing with my self loathing and drinking myself into a stupor,  causing trouble, here there and everywhere, the worst happened when I was 17, I was diagnosed with Liver Cirrhosis, I never knew I had Cirrhosis, but did know of the consequences of alcohol on the liver due to me being predisposed , as I have inherited two allied chromosomes , this is known as PI= then the two genes you inherited from your parents. This system is called phenotype, there are 4 major common genes found in the phenotype system. 

I was still drinking litres of alcohol, I was in poverty, shoplifting for alcohol , I was sent to HMP ALTCOURSE due to 9 shoplifting's, my family relations had stea

dily broken down due to my selfish drinking and causing drinking, not caring. Prison was no palace, let me tell you, (I have felt the lowest of the low in the world, just wanting to die and bearing hatred to everyone and myself.

Then over a period of 6 years had elapsed, by that time signs and symptoms of Cirrhosis where already setting in, I was becoming weaker every day, I have bled inside 9 times (this is called Variceal Hemorrhage), this is a symptom of chronic liver disease which statistically outweighed my chance of surviving. The due to repeated infections within the legs (called cellulitis , and tummy (called Spontaneous Bacterial Peritonitis), I then experienced one of the worst and major life threatening symptoms , which statistically meant that I had a 45% of surviving within a 1 year period.

This symptom is called “ascites”, water retention started to build up in my legs (oedema) and tummy (ascites), the felling of always being sluggish and run down was just awful every day, I could not cope, I was just wishing the end was nearer.  Then whilst being an in-patient at the Royal Liverpool University Hospital, I met the warm and caring Hepatology Team, then a doctor (Dr Tim Cross) recommended I should do a trial for ATTIRE, I was asked by the team first to consent and sign forms that legally justify the Hospital is not responsible for any death or worsening factors that may occur as a result.

And here I am, eating fresh beef, fish fillets vegetables and a well balanced diet, I feel 100 miles an hour, my life has just begun, Never give up, remember KEY is motivation and follow thorough advice from your G.P or Dr.

DATE:15 NOV 15
D/O/B: 28/06/1991
All patient's who have chronic liver disease due to a secondary infection , and are admitted should
be offered the ATTIRE trial free of charge, offered by the National Health Service.
Albumin To prevenT Infection in chronic liveR failurE (ATTIRE) holds some part of the key to the recovery success in Alpha 1-antitrypsin deficiency.

Me Now & Then


My recovery which took about 2-4 months( whilst eating and maintain a healthy balanced diet) is a huge medical breakthrough for alpha-1 antitrypsin deficiency and the possibilities of unraveling a potential cure within cells, who knows.




Trust unveils what single bedrooms will look like in the new Royal Liverpool Hospital

Trust unveils what single bedrooms will look like in the new Royal Liverpool Hospital

The Trust has unveiled what single-room care will look like when the new Royal Liverpool Hospital opens and has called on the great and the good of the City to support R Charity.
Guests including the Lord Mayor of Liverpool Tony Conception, Lord Lieutenant of Liverpool Dame Lorna Muirhead, Mayor of Liverpool Joe Anderson, Liverpool Riverside MP Louise Ellman and Garston, Halewood MP Maria Eagle along with religious and business leaders from the City, were given a tour of the new en-suite single bedrooms, at an event in support of R room 002.jpg
When it opens in 2017, the new Royal Liverpool University Hospital will be the largest hospital in England to have all single rooms for inpatients with many of the rooms offering views of the Liverpool skyline. The Trust aims to raise £10m to invest in cutting edge equipment and additional comforts for patients and their loved ones, by the time the new Royal opens.
All inpatients will have access to smart TVs equipped with technologies enabling them to view test results such as x-rays, to access information on medical conditions and to keep in touch with loved ones through technology like Skype. The screens will also enable family members to upload cherished photos to make patients feel more at home. In addition religious services can also be broadcast to bed-bound patients via the screens. Visitors will be able to make use of reclining chairs enabling loved ones to stay overnight with patients and make visiting much more comfortable.
Aidan Kehoe, chief executive, said: “We have a once in a lifetime opportunity to create a world-class hospital which will set the standard for modern-day hospitals and redefine healthcare for the people of Merseyside. Single bedrooms are one of the ways we are transforming how care is provided for patients and how we are enabling families to be more involved in the care of patients.
“Single bedrooms will mean we can offer the highest levels of comfort, privacy and dignity while also reducing the risk of hospital infection. This mock-up facility shows what patients and staff can expect from single-room care when we open what will be a world-class institution; with the support of people from Liverpool, we take it even further.”
Joe Anderson, Mayor of Liverpool said: “It’s exciting to see what Merseyside patients will have access to when the new Royal opens, and the impact it will have on the city. This is an opportunity to transform what healthcare means and seeing this mock-up facility today shows that we’re on course to have healthcare that we can be all be proud of.
“Liverpool’s best days lie ahead of us and we’ll continue to go from strength to strength. The new hospital and the fantastic health campus that will surround it illustrates the direction this city is heading in.”
Louise Ellman MP for Riverside said: “The new Royal is already having a positive impact on the local community. It’s fantastic to hear that over 1,200 people working on the construction are local with 325 from parts of Liverpool with some of the highest levels of unemployment. And also that 78 apprenticeships and 96 work experience placements have already been created on site. Visiting the single room and seeing some of the technology that will be used to support patient care, highlights how with all our support, the new Royal will be providing local people with the very best in the NHS.”